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The Academic Network of European Disability Experts (ANED)

The right to live independently and to be included in the community in the European States:  ANED synthesis report 

This ANED thematic report is about the progress being made across Europe to respect, protect and ensure the rights of persons with disabilities to live independently and to be included in the community. It is based upon studies that were carried out in early 2019 by ANED country experts in 35 European States.

Following a common research template, each study sought to collect data regarding: the current situation and trends in the living and support situation of children and adults with disabilities; trends in the balance of spending on institutional care versus community-based support; the commitments, targets and approaches of European States; relevant projects and initiatives; financial commitments towards the transition from institutional care to independent living; monitoring and measurement; involvement of persons with disabilities; impact and outcomes.

The synthesis report structure: Chapter 2 discusses how law, policy and guidance concerning the right to live independently and to be included in the community interprets and frames the obligations of States. It focuses on the important distinctions to be drawn between the concept of independent living and that of ‘care’, on the compatibility of congregate living with Article 19 of the CRPD and on the centrality of choice and control both as a vehicle for and outcome of the transition from institutional care to independent living.

Chapters 3 and 4 These chapters present key themes emerging from the ANED country studies, illustrated with examples drawn from them, while providing some overall indicators of progress. It considers the current situation and recent trends in the living situation of persons with disabilities and on expenditure on institutional care versus measures in support of independent living. It provides an overview of the relevant commitments, plans and approaches of European States, highlighting promising practices, as well as areas of concern.

Chapter 5 makes concluding remarks and proposes recommendations for the European Commission, for European countries covered by the study and for other key government and non-government actors.

Find the report here.

Themes

Each year we assess evidence relevant to progress on the EU2020 Strategy from a disability perspective.

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Countries

DOTCOM

DOTCOM describes the policy and legal situation across the EU in the light of the commitments undertaken for the implementation of the UN Convention on the Rights of Persons with Disabilities

Find information using DOTCOM

Based on data of Eurostat it can be estimated that there are approximately 80 million EU citizens with disabilities.

The EU and its Member States cooperate to ensure the enjoyment of their rights of EU citizens with disabilities and their participation in society on an equal basis with others as provided in the UN Convention on the Rights of Persons with Disabilities (UNCRPD) and the EU Disability Strategy and relevant EU legislation.

The Academic Network of Disability Experts (ANED) supports the European Commission and the EU Member States by providing independent scientific advice, analysis and information on EU and national disability policies and legislation, links of national policies with the EU level, as well as information about the situation of persons with disabilities.

Thematic priorities for ANED’s annual work programmes in fields as employment, education, health and social protection are discussed and agreed with the European Commission, to ensure relevance for the main priority issues for EU citizens with disabilities.